Hi everyone! Everyday that passes by, I feel a stronger passion for HIV/AIDS. It is so easy to go through life not caring of a disease that "you might think you won't get". But that is not the case. As all of you must know already HIV/AIDS can affect anyone. As the days go by in class, the assignments seem to touch me in a deeper way. I can start making an emotional connection with the individuals who suffer from the virus. I just saw the movie Common Threads: Stories from the Quilt. Let me tell you this was an inspiring documentary. I can see why it is an Oscar winning movie. It makes the viewer (ME) realize that HIV/AIDS has a face. A brother, son, father, mother, sister, daughter, and many others. It makes you take notice that these were people who were that somebody to someone. I won't give details. If your intrigued watch it NOW!
This week after watch the movie I decided to research a bit about Hemophilia in children. During the outbreak of HIV/AIDS almost all hemophiliacs contracted the virus.This is scary! What do I mean by scary? hmmm the fact that these children are born with a need, but can have the chance to get more than they ever needed.
Hemophilia
What is Hemophilia?
The human blood in all of us has proteins that are known as the clotting factors. These clotting factors help stop bleeding and allow the blood vessel to heal."The last step in the clotting process (also called coagulation) is the creation of a "net" that closes the torn blood vessel and stops the bleeding" (Griffin, 2007). This part of the process involves clotting factors VIII and IX (Griffin, 2007). People with this disease lack on of the clotting factors, which makes their blood not able to clot properly.
"Hemophilia A, also known as factor VIII deficiency, is the cause of about 80% of cases. Hemophilia B, which makes up the majority of the remaining 20% of cases, is a deficiency of factor IX"(Griffin, 2007).
Patients can have a mild, moderate, or severe case of Hemophilia. This all depends on the amount of factor in the blood.
"A patient whose blood tests suggest severe hemophilia will usually bleed frequently, whereas another patient with a milder form will usually bleed only rarely. However, there is a range of severity within each group. The reasons for this variability may relate to other clotting factors or to differences in behaviors that present different risks of injury" (Griffin, 2007).
Can you imagine being a little kid and not being able to enjoy you life like the other little kids in the playground?
"Currently, about 17,000 people in the United States have hemophilia. About 1 in every 5,000 boys is born with hemophilia; girls are more rarely affected by this genetic condition linked to gender" (Griffin, 2007).
Signs and Symptoms of Hemophilia
The signs and symptoms vary depending on the severity of the factor missing."Once babies with hemophilia begin crawling and cruising, parents may notice raised bruises on the stomach, chest, buttocks, and back" (Griffin, 2007). The brusies tend to appear in unlikely places , and parents might be suspected of abuse.
Diagnosing Hemophilia
Doctors using do a set of blood test on the child. The test include a complete blood count (CBC), prothrombin time (PT), activated partial thromboplastin time (PTT), factor VIII level, and factor IX level.
Treating Hemophila
Hemophilia is a lifelong condition with no cure (other than liver transplantation), it can be successfully managed with clotting factor replacement therapy (Griffin, 2007).The patient has to have periodic infusions of the deficient clotting factor in their blood. "Factor replacement may be given through an intravenous (IV) line either at the hematology clinic or at home by a visiting nurse or by parents (and even older patients) who have undergone special training" (Griffin, 2007). The doctors will also teach the parent how to correctly inject your child
Griffin,S.(2007). Hemophila. Retreived October 6, 2009,from,http://kidshealth.org/parent/medical/genetic/hemophilia.html
I just wanted to write about this disease to outline a disease that can mean a way of contracting a killer.In the late 1970's until the mid-1980's, the clotting factor concentrates also contained H.I.V.
each dose of which is extracted from the blood of as many as 2,000 donors.
DYK: I found a very interesting organization that advocates people to adopt children with HIV/AIDS. The founding family adopted two children who were thought to have HIV due to their mother having AIDS the the possibility of antibodies passing. Well, their children were positive and now they help other families see that HIV/AIDS orphans deserve a chance. These are all innocent children who didn't have a choice in getting the virus just like hemphiliacs it is a disease that decided for them.
They have recruited over 1000 families from all the 50 states and even 13 countries. WOW! It is amazing to know that many people care for children no matter there HIV status.
http://www.aidskids.org/